Founder & CEO Story

When I first stepped onto the softball field at age 4, I knew this is the sport I want to play as long as I possibly can. Softball is more than a game to me, and it always will be. I started competing on a travel team at 8 years old, for years we traveled throughout the United States competing in tournaments every weekend.

By my sophomore year of high school, I was on an elite travel and high school team as a star athlete. But none of that matters when you do not have your health.

I was 16, it was my sophomore year of high school when my mom got diagnosed with breast cancer, when I found out It hit me like a truck. Softball was my escape during this hard time and I could not be more blessed and grateful for it. I always thought this would be my toughest battle but I was wrong.

Between ages 16-17 I was already touring colleges who were very interested in me as a student athlete but then at age 17 is when my health took an unexpected turn for the worse. I was playing 3rd base in our high school district softball game, this was my junior year. It was the first play of the game, a bunt was laid down, I was running for the bunt that I have successfully completed plenty of times throughout my career. When reaching for the ball I blacked out on the field,

After the blackout, I got back up a few seconds later, not knowing what really just happened. I returned to 3rd base with an excruciating migraine, dizzy, nauseous but I did not want to let my team down knowing the significant of this game. The scariest part in that moment was I did not even recognize my teammates. I heard the opponents coach call for the trainer as he was standing close to me coaching.

I continued to play (stand there) for 3 more innings till the trainer pulled me out of the game, she was by my side every inning. The lights were expanding, the cheering and music was deafening, I was crying every inning. But when asked if I was okay I always said yes.

2 weeks after the incident I was still home from school, I went to an orthopedic because my neck was bothering me. He said your fine its whiplash. I finally returned back to school but I could still not operate properly I did not feel like myself. After 2 months went by I had experienced 50 migraines straight, and said to my mom something is really wrong. We had a neurosurgeon appointment scheduled which than led to multiple MRIs, CAT Scans and appointments…

I was diagnosed with Chiari Malformation a Serious Neurological Disorder in which the brain tissue extends into the spinal canal, present at birth. I was born with this condition but the symptoms that causes excruciating pain did not appear until my black out on the field. Finding out the blackout was caused by cerebrospinal fluid being blocked to my brain.

My Neurosurgeon said, “get ready kid you’re going to be having brain surgery”. Two months later I was signing my will and living will then a day later I was in a 9-hour brain surgery and 5+ days in PICU. My first thought and question when I was diagnosed was “will I be able to play ball again?”, and fulfill those scholarships.

The reason my surgery was needed is because of the symptoms and the CSF flow. Chiari Decompression: A posterior fossa decompression is a surgical procedure performed to remove the bone at the back of the skull and spine. The dura overlying the tonsils is opened and a patch is sewn to expand the space. The goals of surgery are to stop or control the progression of symptoms caused by tonsillar herniation, to relieve compression of the brainstem and spinal cord, and to restore the normal flow of cerebrospinal fluid (CSF).

During these years I watched my family and myself struggle to accurately manage how I have been feeling daily, weekly, monthly to report back to my doctor. My appointments felt all over the place, unorganized and we were getting nowhere. As I was going through these health issues I started to slowly create the perfect all in one medical log needed for every person who is battling a health issue.

Being able to visually see your progress or non-progress written down can be very therapeutic, you get the thoughts out of your head instantly instead stressing and trying to remember every detail for your next appointment.

I do not want to feel like a statistic. I want to make a difference and help people who are suffering like I am.
Three years after my surgery, I am still searching for relief. I am battling dehabiliting symptoms daily and using my medical log to help me take control of my health.

I had the game I absolutely cherished ripped away from me in the blink of an eye, I took this game for granted thinking I would never lose it. My family and I finally had a lifelong dream of ours coming true, to be a college athlete but life will always lead you in a different path for a reason. “It’s not whether you get knocked down; it’s whether you get up” – Vince Lombardi

Jordan Ray
Founder & CEO